Our Little Kartoffel

We have created this place with a two-fold purpose in mind. First and foremost as a way to help raise awareness and provide resources for parents and caregivers to people with pachygyria and other rare disorders. Second, we wish to use this space to keep all those who are connected to us updated on what’s going on.

We will be updating here on a semi-regular basis. We will also be posting in the Blog section with anecdotes and updates on how our little Kartoffel is getting on.

Thanks for stopping by, we are glad you’re here.

Cheers.